Understanding the Arizona Long Term Care System and Agency with Choice Program

For individuals enrolled in the Arizona Long Term Care System (ALTCS) who require attendant care, habilitation, and similar supportive services, the Agency with Choice (AWC) program offers a unique pathway to self-directed care. This option empowers participants to take a proactive role in managing their care within the comfort of their own homes. This article delves into the specifics of the Arizona Long Term Care System and the Agency with Choice program, outlining its benefits, requirements, and how it can be a valuable resource for those needing long-term care in Arizona.

Decoding Agency with Choice: A Self-Directed Care Model

Agency with Choice (AWC) is specifically designed as a service delivery model within the Arizona Long Term Care System (ALTCS). It caters to ALTCS members who prioritize receiving care in their familiar home environment, contrasting with institutional settings like residential facilities or nursing homes. This program acknowledges the growing preference for home-based care and offers a structured approach to achieve it.

Arizona Long Term Care System (ALTCS) Explained

The Arizona Long Term Care System (ALTCS) is a critical program within Arizona, providing comprehensive long-term care services to individuals who are eligible for Medicaid and have ongoing medical or personal care needs. Administered by the Arizona Health Care Cost Containment System (AHCCCS), which is the state’s Medicaid agency, ALTCS ensures that eligible Arizonans have access to necessary care services.

Agency with Choice: More Than Just Personal Care

Agency with Choice operates as a non-medical option under the ALTCS umbrella. It focuses primarily on delivering personal care, chore assistance, and other essential services tailored for seniors and individuals with disabilities who have less intensive medical needs. A key differentiator of AWC is its emphasis on choice and control. It enables individuals to select their preferred care providers and customize the services they receive, all while benefiting from the administrative and supportive framework of a provider agency.

In the Agency with Choice model, a co-employment relationship is established. The provider agency officially acts as the employer, handling legal and administrative tasks such as payroll and compliance. Simultaneously, the care recipient takes on the role of the managing employer, responsible for the day-to-day direction of their caregiver. This includes crucial responsibilities like hiring, scheduling, supervising, and if necessary, dismissing caregivers. Furthermore, recipients are empowered to identify and address specific training needs for their chosen caregivers, ensuring a personalized and effective care experience.

Comprehensive Services Offered Through Agency with Choice

The Agency with Choice program in Arizona provides a wide array of services to support participants in effectively managing their care. These services are designed to create a holistic and person-centered care experience:

  • Dedicated Case Management: Each participant benefits from case management services. Case managers work closely with individuals to develop personalized support plans that are aligned with their unique needs, preferences, and goals. This ensures that the care provided is truly individualized.
  • Caregiver Recruitment and Management Support: AWC empowers individuals to select their own caregivers. The program provides support in caregiver recruitment and offers tools and guidance for managing caregivers effectively. This includes assistance with scheduling, training coordination, and overseeing caregiver activities.
  • Financial Management Expertise: Navigating the financial aspects of care can be complex. AWC includes financial management services to handle payments to service providers and manage individual care budgets. This relieves participants of administrative burdens and ensures fiscal accountability.
  • Training and Educational Resources: To enhance the self-direction experience, AWC offers training and educational resources for both participants and their families. These resources equip them with the knowledge and skills needed to effectively manage their services and finances, promoting informed decision-making and greater independence.
  • Advocacy and Support Services: The program provides robust support and advocacy services for members and their families. This includes assistance in navigating the often-complex healthcare and disability service systems, ensuring that participants can access the resources and support they are entitled to.
  • Care Coordination: Effective care requires seamless coordination among various providers. AWC facilitates the coordination of care between healthcare providers and other service providers involved in the participant’s care, ensuring a cohesive and integrated approach.

Key Advantages of Choosing Agency with Choice

The Agency with Choice program offers significant benefits for elderly and disabled individuals in Arizona, promoting greater independence and control over their lives:

  • Home-Based Care: A primary advantage is the ability to receive necessary care within the comfort and familiarity of one’s own home. This is often preferred over institutional care, allowing individuals to maintain their routines and connections to their community.
  • Self-Directed Care Empowerment: AWC champions self-direction, giving participants significant control over how their care is delivered. This includes choosing caregivers, setting schedules, and deciding on the types of services received, fostering a sense of autonomy and dignity.
  • Guaranteed Entitlement: For those who meet the eligibility criteria, Agency with Choice is an entitlement program. This means that all eligible applicants have the right to choose this care model, ensuring access to self-directed care for those who qualify.

Eligibility Requirements for Agency with Choice

To participate in the Agency with Choice program, applicants must first be enrolled in the Arizona Long Term Care System (ALTCS) and fulfill specific functional and financial criteria.

Functional Eligibility Criteria

To meet the functional requirements, the applicant must be:

  • Age 65 or older, or blind, or disabled: This ensures the program serves the intended population needing long-term care due to age-related needs, blindness, or disability.
  • Require Nursing Home Level of Care: Applicants must demonstrate a need for the level of care typically provided in a nursing home or intermediate care facility. This is assessed to ensure that AWC services are appropriate for their care needs.

Financial Eligibility Criteria

Financial eligibility is also a key component to qualify for Agency with Choice. The income and asset limits are aligned with Medicaid guidelines:

  • For Single Applicants: The maximum monthly income allowed is $2,742, which is equivalent to 300% of the Supplemental Security Income (SSI) Federal Benefit Rate. Additionally, countable assets are limited to $2,000.
  • For Married Applicants (both applying): When both spouses are applying for services, the combined maximum monthly income is $5,484, and the combined asset limit is $4,000.

These financial thresholds are set to ensure that the program serves individuals with genuine financial need who require assistance with long-term care costs.

Navigating the Application Process for Agency with Choice

Applying for Agency with Choice involves a structured process to ensure eligibility and appropriate service allocation.

  1. ALTCS Enrollment: The first crucial step is to enroll in Arizona Medicaid Long Term Care Services. This must be done in person at one of the designated ALTCS offices. In-person enrollment allows for direct assistance and clarification during the initial application stages.
  2. Self Directed Attendant Care Form: After initiating the enrollment process, the next step is to download and complete the Self Directed Attendant Care Form. This form provides detailed information necessary for the AWC application.
  3. Financial Eligibility Determination: Once the application and form are submitted, AHCCCS will determine financial eligibility based on the provided documentation and financial information.
  4. Medical Eligibility Assessment: Following financial eligibility confirmation, a social worker or nurse will conduct a comprehensive interview to assess the applicant’s medical eligibility. This assessment verifies the applicant’s need for long-term care services and ensures AWC is the appropriate program.
  5. Case Manager Assignment and Care Provider Selection: Upon successful completion of the medical eligibility assessment, the applicant is assigned a dedicated case manager. The case manager will then assist the individual in choosing a suitable care provider and in developing their personalized care plan.

For more detailed information about ALTCS membership and Agency with Choice resources, the AHCCCS website is an invaluable resource, offering comprehensive guides and updates.

Who Can Become a Caregiver Through Agency with Choice?

Agency with Choice offers flexibility in who can be hired as a caregiver, expanding options for care recipients. Generally, anyone over the age of 18 can serve as a caregiver. This includes a wide range of individuals such as:

  • Adult children
  • Relatives
  • Friends
  • Neighbors
  • Professional caregivers

However, there are specific restrictions to ensure appropriate and ethical caregiving relationships. The following individuals are restricted from being paid caregivers under the AWC program:

  • Parents (including stepparents and foster parents) of a minor child. This restriction is in place to avoid potential conflicts of interest and ensure appropriate child care arrangements.
  • Individual Representatives, Medicaid payees, and legal guardians of mentally incompetent adults. These roles often have fiduciary responsibilities, and serving as a paid caregiver could create conflicts of interest.

Weighing the Pros and Cons of Hiring Different Caregivers

Choosing a caregiver is a significant decision. Agency with Choice allows for hiring family, friends, or individuals unknown to the care recipient prior to hiring. Each option presents distinct advantages and potential challenges.

Hiring Friends or Neighbors: Considerations

Advantages:

  • Familiarity and Trust: Hiring someone already known and trusted, like a friend or neighbor, can significantly reduce stress and enhance comfort for the care recipient.
  • Flexibility: Friends or neighbors may offer greater flexibility in scheduling and be more willing to accommodate changing needs or last-minute requests.
  • Convenience: Having a caregiver who lives nearby provides convenience, especially in emergencies or for immediate needs.

Disadvantages:

  • Boundary Challenges: Personal relationships can complicate the professional caregiver-client dynamic, making it difficult to establish and maintain clear boundaries.
  • Relationship Strain: If issues arise in the caregiving relationship, it could negatively impact the pre-existing friendship or neighborly relationship.

Hiring Family Members: Points to Consider

Advantages:

  • Convenience and Availability: Hiring a family member can be highly convenient, with potentially greater availability and willingness to provide care on short notice.
  • Familiarity with Needs: Family members often possess a deep understanding of the care recipient’s history, preferences, and needs, leading to more personalized care.
  • Trust and Peace of Mind: Entrusting care to a family member often brings a high level of trust and peace of mind, knowing a loved one is caring for the recipient.

Disadvantages:

  • Potential for Tense Relationships: Disagreements about care decisions or perceived inadequacy of care can lead to tension and strain within family relationships.
  • Lack of Professional Expertise: Family members may lack formal training and expertise in caregiving, potentially impacting the quality of care provided compared to a professional caregiver.
  • Caregiver Fatigue and Burnout: Caregiving demands can be emotionally and physically taxing. Family caregivers are particularly susceptible to fatigue and burnout, which can compromise the quality of care and potentially lead to negative outcomes for both the caregiver and care recipient.

Hiring Someone Unknown: Advantages and Disadvantages

Advantages:

  • Wider Pool of Candidates: Looking beyond personal networks opens up a larger pool of potential caregivers, increasing the chances of finding a well-suited individual.
  • Fresh Perspective and Professionalism: A caregiver who is not a family member or friend may bring a fresh, objective perspective to caregiving, and may be more likely to maintain a professional approach.
  • Easier Employer-Employee Dynamics: Establishing a clear employer-employee relationship might be simpler and more straightforward with someone who is not already part of one’s personal life.

Disadvantages:

  • Unfamiliarity and Uncertainty: Hiring someone unknown introduces uncertainty and unfamiliarity. Initial interactions are based on resumes and references, requiring a period of adjustment and trust-building.
  • Compatibility Risks: There’s no guarantee of personality compatibility or a positive working relationship, which could lead to conflicts or dissatisfaction for the care recipient.

Essential Qualifications for Attendant Care Workers

Regardless of their prior relationship with the care recipient, all attendant care workers under Agency with Choice are expected to possess certain key qualities and meet specific qualifications. An ideal attendant care worker is:

  • Caring and Empathetic: They must be genuinely caring and willing to perform required tasks with sensitivity, understanding, and respect.
  • Flexible and Adaptable: Care needs can change, so flexibility and adaptability are crucial.
  • Confidential and Respectful: Maintaining confidentiality and respecting the care recipient’s privacy is paramount.
  • Dependable and Reliable: Consistent and reliable attendance is essential for providing continuous and effective care.

In addition to these personal attributes, formal requirements include:

  • Minimum Age: Must be 18 years of age or older.
  • Legal Residency: Must be a US citizen or permanent resident.
  • Physical Capability: Must be physically able to perform the required care tasks.
  • Identification: Able to present two valid forms of identification.
  • Social Security Number: Must possess a valid Social Security number.
  • References: Able to provide satisfactory personal and/or professional references.
  • Certifications: Must hold current CPR and First Aid certifications.
  • Background Check: Must successfully pass a criminal background check.

Comprehensive Caregiver Training Resources

To support caregivers in their roles, Agency with Choice facilitates access to comprehensive training. Caregiver training is primarily provided through OMNEAN, an established educational platform specializing in caregiver education. OMNEAN offers diverse learning formats, including:

  • In-person classes: For hands-on, interactive learning experiences.
  • Virtual classes: Providing flexible, remote learning options.
  • Self-paced online courses: Allowing caregivers to learn at their own speed and convenience.

This training ensures that caregivers are well-prepared to provide high-quality, safe, and effective care to AWC participants.

FreedomCare: Your Trusted Fiscal Intermediary for Agency with Choice

For those navigating the Agency with Choice program, choosing a reliable and professional fiscal intermediary is crucial. FreedomCare stands out as an ideal option. With a proven history of serving the elderly and individuals with disabilities, FreedomCare is committed to ensuring participants receive the necessary support to live independently and manage their self-directed care effectively.

FreedomCare distinguishes itself through:

  • Dedicated and Caring Personnel: Offices are staffed with compassionate professionals dedicated to providing exceptional customer service and supporting participants in successfully self-directing their care.
  • Statewide Service Coverage: FreedomCare extends its services across Arizona, with offices strategically located in numerous counties including Maricopa, Gila, Pinal, Pima, La Paz, Yuma, Santa Cruz, Graham, Cochise, and Greenlee, ensuring accessibility for individuals throughout the state.

If you are seeking a dependable and experienced fiscal intermediary for your Agency with Choice journey, FreedomCare offers the expertise and support you need to thrive in self-directed care.

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